How to make a rehydration electrolyte drink at home (for sports or sickness)

Failsafe Rehydration Therapeutic Tonic

Failsafe Rehydration Therapeutic Tonic

I’ve just been posting about how Miss 2 and I were rushed to hospital by ambulance – her with croup and me with gastro. This Failsafe Rehydration Tonic is from Sue Dengate’s book about understanding food. It’s an easy to make Gastrolyte style solution to rehydrate after vomiting, diarrhoea, or when you’ve been too sick to eat. It’s a handy recipe to have for both adults and sick kids! It can also be used for fitness and wellness reasons after training or after sports – it’s much better for you (and cheaper) than commercial drinks that are packed with preservatives and artificial colours.


  • 1 litre boiled water
  • 2 Tbsp sugar
  • 1/4 tsp salt
  • 1/4 tsp baking soda (sodium bicarbonate)



  1. Mix well.
  2. Sip regularly.

What a nightmare! Getting hospitalised for Mother’s Day at the same time as my toddler!

Hospitalised for gastroenteritis

Hospitalised for gastro

Being a solo mother for a medically fragile child with chronic health issues (including multiple food and airborne allergies) poses a heap of challenges at the best of times. Having us both hospitalised at the same time was incredibly difficult and it frightens me to think what would have happened if my family hadn’t been willing to spend an hour driving in to us and forgoing sleep for about 40 hours.

We actually had quite a pleasant Mother’s Day to begin with. We went to a playgroup for a short time and then went on to a wonderful Solo Mother’s event that was being held.

I’d spent Saturday cleaning like mad (which takes hours because of her dust mite allergies) and then feeling unwell with a nose running like a faucet. I still wasn’t feeling well on Sunday and figured I might have a mild cold.

Things all went downhill at 1am (so, I try to tell myself in an upbeat way that really Mother’s Day had finished) when a loud barking noise coming from my daughter’s room woke me and I found her struggling to breathe. Her story is here.

When the ambulance crew arrived at 1.30am, I was deperately trying to keep my daughter upright (who was determined that she wanted to be alone, prone, and asleep), trying to wake her up to full consciousness, and trying not to throw up.  There’s no time to be sick when your a solo parent with a sick child – I also had a sufficiently high embarassment reflex not to want to hurl in front of the three lovely (male) paramedics; there’s something that’s just easier about vomiting in private.

I spent the ambulance ride sucking on a home-made coconut milk ice-block trying to convince myself not to vomit and looking after Miss 2.

I’m so grateful for all of the lovely staff that helped us at the hospital. A nurse read Miss 2 picture books while I was busy vomiting in the hospital bathroom.  My embarrassment reflex declined as I got sicker; I ended up just drawing the curtain for her room and being grateful for the many vomit buckets the hospital stocks.

My parents spent an hour driving in to us and while Nana stayed with Miss 2, Poppa drove me (in the opposite direction) to collect the car seat and various things from home. This took a long time as the vomiting and diarrhoea kept me in the bathroom a lot and the pain often felt like a thousand glass daggers writhing through my intestines. At times I was crawling through my home on my hands and knees on gritted teeth determined to pack. Poor Poppa! he so wanted to help but couldn’t do more than watch quietly as I assembled everything we needed; it can’t have been easy either having me dry wretch all the way back to the hospital.

We finally got back to the Children’s Hospital and the nurses transferred me to the adult hospital’s Emergency Department. Nana and Poppa stayed with Miss 2 while I got admitted. I was so wracked with constant vomiting that I couldn’t even speak to the doctor unless it was in-between the waves of pain (and more importantly once the anti-emetic had kicked in). They did various tests for infection, a chest x-ray, and were monitoring me in case my appendix burst or my gallbladder (squeezed dry by that point) did anything gnarly. Apparently I was horribly pale, shivering uncontrollably (bless the nurses that brought heated blankets!), and looking pretty crap (aside from the vomiting and hobbling to the adjacent toilet), I went through two IV bags of fluids and a bunch of drugs before I was stabilised enough to sip water. As really awkward timing, Miss 2 got discharged almost 6 hours before me! Thank god Nana + Poppa were with her as I’m not sure what would have happened otherwise – it certainly would have been a far more traumatic experience for both of us!

Overall, they thought I had a severe case of viral gastroenteritis with severe pain from the inflammation + a cold/flu virus, and possibly Miss 2’s croup as well. I was unwell enough that they were considering admitting me into of the other wards but Miss 2 needed me so I got discharged to family care and monitoring instead (as there’s still a risk the appendix could progressively worsen). I’m so grateful that this has happened at a time when my family can help care for us as I can’t walk much without the pain starting and am pretty much living on mum’s Fail-safe Porridge and Rehydration Therapeutic Tonic.

What is croup and how does it effect toddlers?

What does croup look like in toddlers?

What does croup look like in toddlers?

Croup is a viral illness in young children which causes narrowing of the upper airways. Croup is often a mild illness but can quickly become serious, so do not hesitate to get medical help.

The funny thing about croup is that it’s like the vampire of toddler illnesses. During the day it may not have a visible impact beyond your toddler eating little (and lets face it sometimes they do want to live on air and crayons) and sounding hoarse. For Miss 2, it was that she woke up on Mother’s Day having largely lost her voice, was eating little, and had a mild temperature in the afternoon.

Toddlers have softer windpipes than older children so it’s often when they lie down to sleep that the narrowed airways will become more apparent. Their breathing may start to wheeze and become progressively more of a struggle; it can also cause a strange cough (stridor). What does a croup cough sound like in a two year old? It sounds a bit like a lion purring or a seal bark; personally I think stridor sounds most like a lion coughing up a fur ball.  The animal metaphors might sound cute but the cough can be so loud that it’s enough to travel between rooms and wake you up at night; it can also be frightening if it’s the first time you’ve heard it and you have no idea what it means!

For many children, croup will be a mild illness (which can recur) and which can be treated at home. For others, they need to see a doctor or require urgent medical care. In New Zealand there is a registered nurse available 24/7 to provide free health advice on Healthline (0800 611 116); they can help assess your child and advise whether to ring for an ambulance or wait to see a doctor the next morning.

Personally, I think that croup is worse for children that have allergies. In fact, as well as viral croup, there is also a form of spasmodic croup which may be caused by Gastric Reflux Disease (GERDs) or by allergies. I’ve also read blog posts from other allergy families where croup has become a recurrent problem for their toddllers.

For Miss 2, I was woken at 1am by her strange noises (the croup cough) and found her struggling to breathe; she’d also started a mild fever while she was sleeping. She already has enflamed adenoids, turbinates, and tonsils as a result of her airborne allergies (and any undiagnosed food intolerances) so having her airways swell further was frightening.  My gut instinct said she needed immediate help and I rang Heathline to check if I should was right, if I should drive her to the children’s hospital (which would delay things) or ring an ambulance. After listening to her breathe, I was told to ring an ambulance.

She was so sick that she slept most of the night in the Emergency Ward bed; she needed to be kept semi-upright (to help her airways). Her fever worsened, even with parecetamol, and didn’t break until morning. The recommended treatment for croup is oral steroids. This made me nervous as:

  • she’s allergic to topical steroids
  • even temporary steroids can cause massive behavioural changes and tantrums in toddlers.

Her allergy to topical steroids results in awful periorficial dermatitis rather than anaphylaxis and having her airways potentially constrict in life threatening ways – so I opted for the oral steroid.

It definitely helped with her breathing. She still had virtually no voice on Day 2 or 3 (it might take a week to return) and I still had to sit up with her on Night 2 but her breathing was manageable at home and no where near as bad as the night she was hospitalised. Thankfully she also hasn’t had any major tantrums so far; mind you, she’s probably too tired to tantrum yet. She’s eating very little as her throat is so sore and is mainly sticking to formula, sips of water, and the occasional mouthful of soft foods.

NOTE – Thank you to all the readers that have shared their stories with me!

I continue to feel that croup can be a much more serious illness for families with medically fragile children – including food allergies, airborne/environmental allergies, asthma, and reflux. Doctors will most commonly look for croup in babies and very young toddlers but plenty of allergy families have shared that their children have continued to have viral croup up to age 10!

If you’re familiar with what a croup cough sounds like then do advocate on behalf of your child for medical care if it’s needed – you’re the one awake in the wee hours of the night hearing it (and they may not have the cough during the day)!  Don’t hesitate to ring for an ambulance at night if your child is struggling to breathe!

It’s worth investigating what charges there are for your local ambulance service and if they have a subscription service. If you live in New Zealand, it’s around NZD$90 for each medical emergency (non-ACC) call-out of a St John’s ambulance but you can get an annual ambulance subscription for the whole household for NZD$65 per year. I’m so glad that I signed us up for membership after her ambulance trip just before Christmas!


Highlights for the month (February)








What are adenoids and why do they need removing? (What is an adenoidectomy?)

What are adenoids?

What do swollen adenoids look like?

Miss 2 is now on the waiting list for surgery. She needs her adenoids removed, her turbinates (inside her sinuses) reduced, and her tonsils will continue to be monitored.

What are adenoids?

Adenoids are soft tissue located located behind the sinuses; they are part of the body’s lymphatic system (so are tonsils). When they are working properly, they help to recognise bacteria and viruses entering through the nose and produce white blood cells to fight off infection.

Adenoids are particularly useful during early childhood while the body is still encountering new bacteria and viruses for the first time and building up the immune system. Doctors tend to consider them most useful up to age 7; in adolescence they begin to shrink and by adulthood they can practically disappear.

Why do adenoids needs removing?

Sometimes in childhood the adenoids swell and stay swollen. This can be due to frequent infections, due to a chronically over-active immune system (i.e. in an atopic child there might be ongoing aero-allergens and food allergies), or for reasons unknown.

This swelling is particularly problematic the younger the child is because their airways are so small to begin with! Also, swollen adenoids often aren’t the only problem. Look at the picture above and imagine that there is also swelling in the nasal passage (swollen turbinates) and that there are also swollen tonsils in the throat – that can result in a highly miserable toddler!

What are the possible side effects of swollen adenoids?

  • Obstructive sleep apnea. The swollen adenoids can intermittently block airflow. It sounds like your child is silent and then there’s a big noisy sucking in of air.
    • In Miss 2 it can be so loud that I can hear it through her closed bedroom door and can sound like something’s fallen off a shelf and hit the floor! It’s a crappy and frightening thing as a parent that can result in just sitting with them in the dark either to check that they are breathing or to give them a gentle nudge to help them breathe again.

  • Snoring and heavy mouth breathing.
  • Snotty / blocked nose.
  • Repeated ear infections. The swollen adenoids can block the Eustachian tubes and prevent fluid draining from the ears to the throat.
  • Blocked ears meaning that everything sounds a bit like it’s underwater.
  • Blocked nose meaning a deadened sense of smell. This can also impact their ability to taste foods.
  • Sinus headaches / pressure (in conjunction with blocked nose).
  • Sore throat and/or difficulty swallowing.
  • Fatigue. They might seem like they’re getting enough hours of sleep but in reality the quality of sleep is poor because their body is struggling to get enough oxygen through the night. It’s a bit like starting each day on a half tank of gas.
  • Developmental delays. Sleep is critical for young children. During those early years, they are rapidly growing and learning. They need sleep to focus during the day; to have time for their brain to make connections between all the things they have learned or experienced; and their brain releases a growth hormone while they sleep. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can make it harder for them to stay on track.
  • Behavioural difficulties. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can result in daily misery that they don’t know how to express.

Why didn’t the doctor identify this earlier?

Your normal doctor (a GP) and even a paediatrician can’t see that the adenoids are swollen. You need to be referred to the Ears-Nose-Throat clinic at your local children’s hospital. They will be able to look in their nose and throat during the initial visit and then may request a facial x-ray and/or CT scan for confirmation. They may also monitor the adenoids over a few visits in order to confirm that they are chronically enlarged and not temporarily swollen due to infection; they may also try medications for a few months to see if these help.

It can be a bit like diagnosing the wind – you can’t see the wind but you can see the effects of the wind. You may even have the referral because of something unrelated (like repeated ear infections) and as a result of that find out that the adenoids have been swollen all along.

What does surgery (an adenoidectomy) involve?

Surgery will normally take place at a hospital (probably as an outpatient). The doctor will review medical history in advance and make recommendations about pausing medications. You will normally be advised not to take anti-inflammatory medications within 7 days of surgery. They will also discuss post-operative pain medication.

The day of the surgery will involve a period of fasting; food or water won’t be permitted because they can impact the anesthetic. It’s a good idea to have family support and a game plan of how to distract your child; an older child may understand why they can’t eat but a toddler is likely to just focus on the fact that they are off routine and they are HUNGRY!

During surgery, your child will be under a general anesthetic. The surgeon will enter through the mouth and the adenoids will be removed with an electrical cauterizing unit. You can watch videos of adenoidectomies (like this one); they aren’t pleasant to watch but it can be useful to help you understand what will happen.

What happens after surgery?

Depending on the age of your child, they may keep them in the hospital overnight for monitoring or they may go to a recovery room and then go home the same day.

They may feel quite groggy and tired for the next few days and also have some nausea; vomiting once or twice is normal but contact your doctor if vomiting persists.

A light, cool diet for the next few days is generally recommended (avoid hot liquids).

I’m sure my parents don’t have fond memories of me having my tonsils out when I was 4. I still remember staying overnight in the hospital! Mostly my memories are positive ones due to the fact that I got to spend a week lording it over my baby brother that I got to eat jelly and ice cream. No memory of the pain remains but the joy of those unexpected treats has lasted decades!

They will prescribed antibiotics and some light pain relief. They need lots of rest for 4-5 days to promote healing but the good news is that it is a much faster heal time than for having tonsils removed. They will also generally have 7-10 days off school and 3 weeks off sports, exercise, and swimming.

They will generally have post-surgery check-ups; your doctor will talk you through potential complications and when to seek immediate medical care.

They may have nasal stuffiness for a few months after surgery and may need nasal drops. Snoring may continue for several weeks after surgery (and may temporarily get louder). Their voice may temporarily change for a few weeks to a few months!

Keep in mind that removing the adenoids may only be one part of a wider treatment plan. If the chronic inflammation was linked to allergies then you will still need to work with a doctor to create an ongoing allergy treatment plan.

Looking for more information? I read through a wide number of sites  and this was the one I found most useful.

Is it worth spending lots of money on a dermal thermometer?


I don’t know about your kids but my Miss 2 is as spirited and headstrong as she is lovely and loving. She does not like thermometers. Even in her sleep she will fight and push me away rather than having a digital thermometer stuck in her armpit and I can forget trying to take her thermometer orally.

I’ve become rather adept at estimating her temperature (with surprising accuracy) but it’s maddening when it’s diagnostically useful to know if her temperature is elevated. I decided that the solution was to try and buy a dermal thermometer like the doctor’s have.  There seem to be two types of these, ones that go in the ear (and often require ongoing purchase of disposable covers) and ones that can read from the forehead. The other issue with an aural (ear) thermometer is that its reading can be impacted if there’s a build-up of wax (so not necessarily that useful if they’re prone to frequent ear infections).

A brand name dermal thermometer like Braun can potentially cost USD$60 (NZD$90-150). I went searching online for reviews of several brands and the recurrent problem was that some people would be delighted and others would find that it just didn’t seem to be accurate. It seemed like a lot of money (on a very limited budget) to gamble on something that might not work so instead I decided to make a slightly riskier (but definitely cheaper) gamble on buying a generic one straight from China.

I have seen these listed by various online retailers and trading sites for anywhere for USD$30 (Amazon) and NZD$30 (TradeMe). Buying it direct from AliExpress cost USD$10 and included free international shipping. Ther are heaps of vendors on AliExpress so take the time to check quantities of sale and their feedback. Mine showed up very quickly and so far seems to be giving the same reading as the digital thermometer so I guess it’s working fine.

Allergy update & how we’re coping

I’m having to put a list together of all of Miss 2’s medical appointments for the last 12 months. It’s part of a bureaucratic process and it feels kind of bleak, we’re at something like 33 now out of 52 weeks. If you factor in her being sick most of the time in between those appointments and the fact that I’m a single mother with very little support, it’s pretty fracking overwhelming. Good thing I’m sitting down with a coffee to write this while she plays gleefully in a ball pit. 

She’s doing better this week – She laughed the other day and it was such a beautiful spontaneous sound that it brought tears to my eyes because it had been so many weeks since I’d heard it.

We both had airborne allergy tests recently and in her typical atypical fashion she came up in hives in several places – except for where she’d been pricked. Later that day her breathing started to labour and an awful snotty nose started that is still with us 10 days later. It makes it hard for her to breathe at times even with her mattress on a 45′ angle and three allergy medications each day (2 oral + 1 nasal spray). 

The good thing is that I reacted typically. Dust mites, dogs, and lots of grasses/weeds. With the help of a gardening association I identified that our little lawn has very little lawn grass and lots of highly aero-allergenic grasses/weeds. I’ve got Bermuda running grass, plantain, and Bahia grass (paspallum) that has an extended pollen season of about 5 months. Oh, there’s also the clover I love but the bees have adored it also this summer and it turns out we’re both allergic to being stung 😦

The grass allergy explains why I haven’t been able to breathe for months with an ongoing cough, worsening wheezing, feeling like there’s an elephant on my chest, and so many headaches / sinus pressure. It explains why walking my daughter to home care I get a headache and have trouble breathing but can easily run around an air conditioned mall. I’m on allergy medications now as well but it’s not like I can just avoid grass for the summer!

Hopefully the grass allergy also explains why Miss 2 has been deteriorating so rapidly since the start of the year. It would fit in timing wise and an aero-allergen would help to explain the summer colds, swollen terminates, swollen tonsils, and bruised swelling under her eyes.

There’s still the possibility of another food allergy or intolerance as well so I’m keeping a daily food diary for both of us (down to each ingredient). There are also several foods (like dairy, soy, gluten, eggs) that can cause excess mucous production even if you’re not allergic. There’s a wider range of allergenic-friendly foods available these days that may still appeal to a toddler but price-wise they’re not too friendly. I’d already reduced the amount of gluten and eggs in our diet; the aim will be to reduce them further (and dairy) to see if it helps and potentially work towards eliminating them all together.

More medical appointments next month with at least three different hospital departments. She may need to go back on her reflux medication as well since that has improved but not gone away and could be another factor in her misery this summer.

On the bright side, she is loved and knows that she is loved. She loves books, her vocab continues to increase (with hilarious and/or imperious sentences being uttered), she is kind, and she is growing.

Can soybean oil and soy lecithin trigger an allergic reaction?


I’m drafting this post late one night in the hot muggy dark when I should be sleeping, would rather be sleeping, because I’ve spent the past hour awake and unable to successfully switch off. I think it’s because my brain is still percolating on today’s research and trying to fit it in with all of the other health-related research of the last few months; it’s rather like trying to put together one of those large jigsaw puzzles where you only have a vague idea of the expected outcome because you’ve lost the lid to the box which has the finished picture.

If you, or a family member or loved one, has been diagnosed with a soy allergy then you’re probably familiar with the phrasing that “the vast majority” (emphasis on the air quotes) of sufferers will not experience an allergenic reaction to soybean oil or soy lecithin. This does then rather prompt the question of, ‘Why not?’

What is Soybean Oil?

This oil is incredibly widely used worldwide. In the USA particularly it is apparently the most widely used edible oil taking up 55% of the market share in 2014. It’s cheap to obtain (because it’s grown year round in many countries as livestock feed), doesn’t have a lot of inherent flavour, and is proven to be highly adaptable and stable for uses within the food industry.

This is problematic if you’re allergic to it because it can appear in anything from dried fruit (like sultanas), to peanut butter, to cookies, to non-dairy coffee creamers. Anything that contains undeclared “vegetable oils” becomes suspect because there is a high likelihood that part (or all) of that is soybean oil.

The soybeans are cracked, heated, rolled, solvent-extracted with hexanes, refined, and then may be further blended and/or hydrogenated (partially or fully). Some sites discuss health concerns about soybean oil purely to do with potential adverse health concerns relating to hexanes, hydrogenation, or trans-fats. I haven’t researched those sufficiently to have formed an opinion so I’ll leave that to readers to follow up on should they wish.

What is soy lecithin?

To make soy lecithin, soybean oil is extracted from the raw soybeans using a chemical solvent (usually hexane). Then, the crude soy oil goes through a ‘degumming’ process, wherein water is mixed thoroughly with the soy oil until the lecithin becomes hydrated and separates from the oil. Then, the lecithin is dried and occasionally bleached using hydrogen peroxide. (1) (2).

Soy lecithin is used as an emulsifier to help stabilize food products and prevent them from separating out into their component forms (like in chocolate or margarine). Sometimes it will be declared on food packaging in full (i.e. soy lecithin), other times there is simply an additive number; 322 is almost always soy, 471 often so.

Can soybean oil or soy lecithin trigger an allergic reaction?

That’s really the crux of the matter if you (or loved one) has been diagnosed as allergic to soy. I’ve seen the full gamut of opinion online and in published books.

Some sources will argue that the high heats used to produce soybean oil and soy lecithin denature the allergenic proteins; others argue that there are no soy proteins in these products (or so few that they can’t cause a reaction). Admittedly, some of these articles I suspect of having a commercial bias.

Some take the middle ground and say that “the vast majority” of people sensitive to soy will not have an allergic reaction and to discuss it with your medical specialist (which you should do).

Some argue that it is difficult to accurately test concentration levels of soybean protein in these products and that often there is no legal requirement to do so (or insufficient oversight for sufficient regulatory surety). For instance, one study in 2001 found that the level of proteins found in six lecithin samples ranged from 100 to 1,400 ppm (parts per million); that’s a big range even in such a small sample size. By comparison, the 2013 ruling by the FDA required that gluten-free foods contain less than 20 ppm (3).

There don’t seem to be large-scale studies into using these products to trigger IgE antibodies. Small studies publishing in 1998 seem to suggest that these can cause an allergic reaction but only in some people that are allergic to soy (4, 5). One (non-medical) article suggested that sensitivity to soy lecithin may be linked to gut permeability (i.e. the more damaged and inflamed the gut has become, the more susceptible one becomes to even the tiniest trace of soy protein).


Yes, it is possible to have an allergic response to soybean oil and/or soy lecithin. Miss 2 appears to be allergic to soybean oil and I have reason to suspect that soy lecithin may also be a problem. Anecdotally, I’ve read blogs by people that react to these and corresponded with others that have. Working out if you’re allergic to soybean oil and/or lecithin can be a lengthy and frustrating process that often comes back to food diaries, trial and error, and consulting with a medical specialist.

Part of the problem with these two products is the possible variations; one day a food product might contain sufficient ppm of soy protein to trigger a reaction and another time it might not. For instance, leaving aside questions of general health, take the following example:

One Friday night you go to the supermarket and purchase (A) ice cream and (B) ice cream cones; both of these products contain soy lecithin as emulsifiers.

  • How much soy protein is in the separate batches of lecithin in products (A) and (B)? What if one has 18 ppm and the other has 1650 ppm?
  • What percentage of each product is made up of soy lecithin? What if one product is 5% and one product is 0.5%?
  • How much of each product are you consuming? What if your ratio of ice-cream to cone is 4:1 ?
  • What if the only reason you have a reaction is because of allergenic loading; i.e. you’re not actually reacting to (A) or (B) but rather to the combined exposure as a result of (A) + (B)?

Maybe you react and maybe you don’t. Maybe you buy exactly those same products (from exactly those same manufacturers) a month later and you do react because one or more of those questions above has a different answer.

Final conclusion: Food allergies suck.

I feel like I should make some off-the-cuff remark like “Food allergies suck (but not as much as vampires)” just to lighten the mood but the reality is that they do. Kia kaha, stay strong.

How a slice of bread gave my daughter an allergy attack

Different circumstances this time to the peanut butter. A few weeks ago I tried the rounds of asking bakeries near our GP’s office on the off-chance that any of them made bread on-site that was soy free. To my delight, there was an artisan bakehouse, specialising in bread, that assured me (after checking) that they had a white Farmhouse Loaf that was absolutely definitely soy free.

It sounds really simple but Miss 2 and I were so overjoyed to be able to eat soft fluffy white bread. It’s a long drive from home so I sliced it up, we ate beautiful bread for a couple of days, and I froze the rest for emergencies while I kept practising making bread myself.

That simple pleasure was enough to earn a calendar entry and feature into menu planning for this week since we had another appointment with the GP. When we ran out of bread two days ago, instead of making bread, I decided to pull the emergency bread out of the freezer as a treat since we’d be able to replace it.

Why was this a problem? Because when I went to the same bakery today and asked the same questions (always, always double check just in case a recipe has changed or a product supplier)… this time I was told that it does contain soy protein and that I must have been informed incorrectly last time.



In a painful twist of irony, we’d sat eating that same damn bread (from the freezer) at the playground before going to the doctor’s appointment. I had a sinking feeling when I realized that I couldn’t remember if there were 4 slices or 6 slices in the bag I took out of the freezer. Did we eat it yesterday? I honestly don’t recall because it wasn’t on my threat radar and my focus was entirely on the hospital appointment. It does explain an earlier allergy attack recorded in my daily notes that I thought couldn’t be from soy because we’d absolutely definitely had no exposure that week (turns out that was wrong…).

It was hard not to be angry and frustrated when I’d been really specific with my questioning and explaining that it was a food allergy. I’m angry that staff got ingredients wrong when it’s being made on site. I’m angry that the store has made my daughter suffer, not once but twice. Her allergy rash started to present before we even got home and was worse by bed time; her eczema had also started to throw up red warning flags. She was too unsettled to go down for her day nap. The afternoon and evening required topical treatment cream, intensive moisturising cream, and oral medication. It’s not enough to prevent the attack but hopefully it helps take the edge off a little.

In reality, there’s always too much to do as a solo parent to spend more than a few minutes dwelling on the unfairness of another approaching storm. I’m grateful that I was cautious and asked again (so we didn’t end up with a second loaf). I’m grateful that food allergies and eczema aren’t contagious (unlike the 14 days of viral diarrhoea that she was too immuno-compromised to fight off and that had us completely quarantined from close contact leading up to Christmas). I’m grateful that we were able to have a friend over to play this afternoon bringing smiles to her face. I’m grateful that she fell asleep in my arms tonight feeling safe and loved and comforted.

What to expect at the hospital – Ears Nose Throat (ENT)



We had another hospital appointment today (the latest in an ongoing string of medical appointments). It was our first with paediatric Ears Nose Throat (ENT) and thankfully after months of waiting it actually was timed perfectly so that she could still have her day nap.

It’s hard waiting in the public health system (while also being grateful that there is a free public health system and the knowledge that there is always a child sicker or more critically urgent than yours). At the same time, I was genuinely grateful today for the way that the timing worked out. Grateful that it had come after her diagnosis of being atopic & (atypically) allergic. Grateful that I now know about the atopic triad and allergic rhinitis and that her many blocked noses and sore ears are quite possible part-and-parcel with the rest of her chronic health issues. Grateful that I now know that when she’s extremely pale and has dark bruises under her eyes, these allergy shiners are actually a warning sign that that her body is battling (with her allergies, inflammation, and atopic illnesses) not that she isn’t sleeping enough. Grateful that we saw the ENT specialist today while she is pale enough that I can heartbreakingly see the veins in her face when she lies on my lap and there are dark smudges under her eyes (while I keep waiting for the paediatrician and dietitian to confer and advise a way forward). Grateful that I have had nudges in the right direction to research and have some idea of what to discuss with today’s specialist.

She was anxious and clinging to me like a koala bear; I’m pretty sure she remembers her panic from the failed barium x-ray despite my assurances that we were going to a different part of the hospital. Thankfully this first visit was short and relatively introductory. The doctor wore special magnifying glasses to look up her nose and at her tongue and throat (she played yawning hippopotamus very well). He looked in one ear with a standard otoscope (the one that looks like a flashlight) and she refused to co-operate for the other one (which he respected).

He needs to confer with the paediatrician so is aiming for minimal intervention at the moment. Apparently she does have a lot of congestion up her nose and allergies/sensitivities (whether to food, plant, or environmental) are likely to be playing a part in the inflammation affecting her sinuses and the soft tissue beneath her eyes. There’ll be another skin prick test, for airborne this time, and I hope it yells us something useful. I’m scared it will come back negative again and in her case that doesn’t necessarily mean negative it could just mean that she has non-food allergies but is also reacting to them systemically and with a non-IgE mediated delayed response.

She’s also going on to nightly doses of an antihistamine which may help to settle her system overall and reduce her current swelling and inflammation. It’s a good thing, I think, but at the same time I’m sad because she’s still trialing being off daily doses of reflux medication and now we’re onto another med. I also know that while some parents of toddlers might secretly be grateful (in some tiny, dark, secret, exhausted part of themselves) to have to give their toddler daily medication that also has a sleepy sedative side-effect; I’m more worried about the rebound effect. I’m looking to when she hopefully comes off of it in a month’s time and potentially goes through weeks of being up late with her cranky drunken-monkey routine because she’s forgotten the knack of falling asleep naturally. Sleep has always been a troublesome thing and precious commodity because of multiple health issues since she’s been born.

Still, right now, I am glad that she is sleeping and that I can drink chamomile tea while gathering my thoughts and processing today. Right now I am grateful that her GP can fit us in tomorrow so that her next specialist test can be re-issued on the correct form (because the hospital apparently used one from before the forms and processes changed in October 2016 – so the scheduler informs me); so grateful that it can be amended by the GP and not some administrative nightmare trip back to the children’s hospital.