What foods contain soy?

Soy beans (edamame)

Soy beans (edamame) are an obvious form of soy; you will be surprised how many of the foods you eat are hiding soy!

Is soy really hiding in everything I eat?

You may be surprised how many of the foods you eat each day contain hidden soy. I’ve written previously about  soybean oil (normally called vegetable oil) and soy lecithin. These are incredibly widely used in the international food industry because they are cheap, grown year round, and are not FDA regulated (i.e. these do not have to be declared as an allergen on packaging). These are often hidden in compound ingredients, as are other products that may be soy derived. I have to check ingredients every single time I buy something (even if I’ve bought it before). I don’t buy anything containing oil or emulsifiers unless those are 100% declared and identifiable (i.e. canola oil and sunflower lecithin). 

I also have to be careful about bathroom products because glyercin can be soy derived. I’ve changed our bathroom to natural products like shampoo bars and chemical free soap products.

What foods contain soy?

I’ve tried to keep the table below to ingredients. The reality is that these ingredients can be in anything other than raw fruit, most raw vegetables, and most unprocessed raw meats. Soy can be present in anything else including bread, biscuits, crackers, dried fruit (i.e. sultanas have oil added), deli meats, bacon, sausages, peanut butter, spreadable butter, margarine, spice mixes; I’ve even looked at tins of ‘beans in springwater’ which have had soy!

I’ve inserted the table it as a photo so that it’s possible to save the image to your phone or print it for your wallet.

Ingredients that may contain SOY

Ingredients that may contain SOY

Note: Also miso (as a soup or paste)!

What are turbinates and why do they need surgery to reduce them? (Are you sleeping badly? This may be why!)

What do swollen turbinates look like

What do swollen turbinates look like

If you’ve never heard of turbinates before then you’re not the only one! As long as they’re working well then the subject is unlikely to ever come up; they are also not something that your regular doctor (GP) is able to review – finding out there’s a problem first requires a referral to an Ears Nose Throat (ENT) specialist because of the symptoms you are experiencing.

Your turbinates can have a surprisingly large impact on your quality of sleep; this is especially true in young children and the problems are even more exacerbated if they also have troubles with their ears, adenoids, and tonsils.

What are turbinates?

Turbinates are bony structures (covered in moist tissue called the nasal mucous membrane). Inside your nose there are three sets of turbinates: upper (superior), the middle, and the lower (inferior).

Lateral nasal airway

Lateral Nasal Airway: Turbinates, Adenoids, Eustachian Tube Opening

Why do we need turbinates? What do turbinates do?

The turbinates have several important functions:

  • Help warm and moisturize air as it flows through the nose.
  • Protect the openings into your paranasal sinuses.
  • Help create airflow through your nose (important for your sense of smell!).
  • Trap micro-organisms (like viruses) and pollutants (like pollen).
  • Help the voice to resonate (i.e. they affect how we sound).
  • Produce mucous to help clean out the nose and assist the cilia in their work.
  • Help to regulate pressure in the sinuses.
  • Help the nose and sinus cavities to drain.
  • The turbinates play an important mechanical function when we sleep.  When you sleep on the right side, with the right turbinate down, over time the right turbinate fills up with fluid and expands so that it pushes against the septum; this makes you turn on the left side until that side fills up and turns you again. If the turbinates are not functioning correctly then you may wake up feeling cramped and sore with achey muscles.
Turbinates and sinus cavities

Feeling the pressure? Healthy turbinates help regulate pressure and drainage of the sinus cavities.

What causes turbinates to swell?

One of the most common causes of swollen turbinates (turbinate hypertrophy) are airborne allergies (allergic rhinitis) such as grass or weed pollen, birch tree pollen, or dust mites.

Other causes can include repeat upper respiratory infections, hormones, drugs, medication (i.e. as a complication from long-term nasal spray use).

Healthy inferior turbinate

Healthy inferior turbinate – you can see quite clearly that there is a tunnel for air to flow freely past the turbinates.

Swollen turbinates

Swollen turbinates – you can see how they have swollen and are bulging out across the airway to the nasal septum.

What are the possible side effects of swollen turbinates?

  • Stuffy nose
  • Headache
  • Facial Pain
  • Pressure (often in forehead). In young children this may result in behavioural issues, trouble concentrating, or head banging.
  • Nasal drip
  • Loss of Sense of Taste and/or Smell
  • Mouth breathing, noisy breathing, and/or snoring. This is especially problematic if adenoids and/or tonsils are also swollen and obstructive sleep apnea develops.
  • Fatigue. Children might seem like they’re getting enough hours of sleep but in reality the quality of sleep is poor because their body is struggling to get enough oxygen through the night. It’s a bit like starting each day on a half tank of gas.
  • Sore, cramped, achey muscles in the morning. Healthy turbinates play an important mechanical function when we sleep; they are key to helping us unconsciously change which side we are sleeping on through the night.
  • Developmental delays. Sleep is critical for young children. During those early years, they are rapidly growing and learning. They need sleep to focus during the day; to have time for their brain to make connections between all the things they have learned or experienced; and their brain releases a growth hormone while they sleep. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can make it harder for them to stay on track.
  • Behavioural difficulties. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can result in daily misery that children don’t know how to express.

Why do turbinates need surgery?

An Ears Nose Throat (ENT) specialist will be able to examine the interior of the nose quickly and painlessly during outpatient appointments; they may also opt for imaging scans such as x-ray or CT.

It is likely that they will suggest trying non-invasive means initially to see if this reduces the swelling, This is likely to involve a steroidal nasal spray and anti-histamine medication (in the case of allergic rhinitis). They may also recommend additional saline spray / drops to help keep the nose irrigated, or using a humidifier.

If these options do not work an symptoms have not been alleviated then they are likely to recommend surgery. Note: it is important that turbinates are reduced (not removed) and they will slowly regrow; in order for them not to become swollen again, any other underlying issues must still be addressed.

What does turbinate reduction surgery (turbinoplasty) involve?

Turbinates perform highly important functions and removing them entirely can cause a raft of new issues; surgeons will normally opt to reduce the turbinates. There are different methods that can be used; some remove tissue and others aim to shrink them through other means.

A procedure called submucosal resection is a common technique used to treat enlarged turbinates. With this procedure, the lining of the turbinate is left intact, but the “stuffing” from the inside of the turbinate is removed. As the turbinate heals, it will be much smaller than before surgery. Sometimes, this resection can be performed with a device called a microdebrider. This device allows the surgeon to remove the “stuffing” through a small opening in the turbinate. In some instances, more of the turbinate is removed.

Some of these methods shrink the turbinates without removing the turbinate bone or tissue. These methods include cauterization, coblation, and radiofrequency reduction. In each of these methods, a portion of the turbinate is heated up with a special device. Over time, scar tissue forms in the heated portion of turbinate, causing the turbinate to shrink in size.

Turbinoplasty is generally an outpatient procedure performed under general anaesthetic and patients can go home the same day.

Want to find out more about surgery or risks? The American Rhinologic Society has useful information.

What happens after surgery?

You can expect to have pain, fatigue, nasal stuffiness, and a clear fluid nasal discharge for several days after surgery. If this was the only surgery being performed then pain is generally mild  and typically well controlled with pain medications. A saline spray and/or steroidal nasal spray are likely to be recommended to use for several weeks after the surgery.

Swelling as a result of the procedure means that there may still be snoring for a week or two after the surgery, as well as a general feeling of stuffiness. The fluid discharge will generally begin to improve and crust after the first week.

Patients may be off school or work for a week and are recommended to avoid strenuous activity for two to three weeks afterwards.

 

What are tonsils and why do they need removing? (What is a tonsillectomy or adenotonsillectomy?)

How inflamed tonsils compare with normal tonsils

How inflamed tonsils compare with normal tonsils

What are tonsils?

Tonsils are soft tissue located at the back of your throat; they are part of the body’s lymphatic system (so are adenoids). When they are working properly, they help to recognise bacteria and viruses entering through the mouth and produce white blood cells to fight off infection.

Tonsils are particularly useful during childhood while the body is still encountering new bacteria and viruses for the first time and building up the immune system. Doctors seem to be of differing opinion as to how useful they are as adults; I’ve some that have called them redundant and unnecessary, I’ve also met other doctors who view removing them as an absolute last resort.

Why do tonsils need removing?

Tonsils may temporarily swell while fighting infection, sometimes they become so swollen that they result in a very sore throat and fever (tonsilitis), they may also partially obstruct the airways and not respond to non-invasive treatmeants.

Surgery may be recommended to help treat:

  • Multiple case of tonsillitis (seven cases of tonsillitis or strep in the last year, or five cases or more over each of the last two years).
  • Breathing problems related to swollen tonsils
  • Frequent and loud snoring
  • Periods in which you stop breathing during sleep (sleep apnea)
  • Bleeding of the tonsils
  • Trouble swallowing chewy foods, especially meats
  • Cancer of the tonsils

Back in the 1980s, having your tonsils out was kind of a childhood rite of passage. It was a very common procedure and often parents had already experienced a tonsillectomy in their own childhood. Medical opinion has now swung in a different direction and there is a more stringent list of criteria that often needs to be met (as well as requiring parent consent / advocacy). For a balanced medical opinion, try this post by Christopher Johnson (a pediatric intensive care physician) .

What is tonsil grading?

Surgery is most likely to be recommended if tonsils are consistently swollen at Grade 3 or Grade 4 coupled with other complications (such as snoring and/or sleep apnea).

What are the 4 grades of swollen tonsils

What are the 4 grades of swollen tonsils?

Basically tonsils are graded based on how much of the airway they block.

  • Grade 0 = tonsils are within the the tonsillar fossa
  • Grade 1 = tonsils obstruct 0-25% of oropharyngeal airway
  • Grade 2 = tonsils obstruct 26-50%
  • Grade 3 = tonsils obstruct 51-75%
  • Grade 4 = tonsils obstruct 75%

What are the possible side effects of swollen tonsils?

  • Fever / temperature. Keep in mind that children can react in their own individual ways – they may keep getting low grade temperatures instead of a fever.
  • Runny nose and congestion (as well as the sore throat).
  • Difficult or painful swallowing.
  • Swollen and tender glands (lymph nodes) on the sides of the neck.
  • Bad breath.
  • Fever and chills.
  • Tiredness and headache.
  • Stomach upset or pain.
  • Mouth breathing, noisy breathing, and/or snoring (due to enlarged tonsils blocking the airways). Obstructive sleep apnea. The swollen tonsils and/or adenoids can intermittently block airflow. It sounds like your child is silent and then there’s a big noisy sucking in of air.
    • In Miss 2 it can be so loud that I can hear it through her closed bedroom door and can sound like something’s fallen off a shelf and hit the floor! It’s a crappy and frightening thing as a parent that can result in just sitting with them in the dark either to check that they are breathing or to give them a gentle nudge to help them breathe again. If you’ve spent time with them hooked up to an oxygen saturation monitor then you’ll be familiar with what a stark difference there is between their oxygen levels when alert and upright versus lying prone to sleep.

  • Fatigue. They might seem like they’re getting enough hours of sleep but in reality the quality of sleep is poor because their body is struggling to get enough oxygen through the night. It’s a bit like starting each day on a half tank of gas.
  • Developmental delays. Sleep is critical for young children. During those early years, they are rapidly growing and learning. They need sleep to focus during the day; to have time for their brain to make connections between all the things they have learned or experienced; and their brain releases a growth hormone while they sleep. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can make it harder for them to stay on track.
  • Behavioural difficulties. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can result in daily misery that they don’t know how to express.

Keep in mind that young children (i.e. toddlers) may not be able to describe their symptoms to you and it may not even occur to them to do so (especially if they chronic health issues). They may also be confused by referred pain; the ears and throat share nerves (as well as being linked by eustachian tubes) so they may say their ear is sore when the infection is actually in their throat. Another possibility is if they keep exhibiting teething type behaviour well after all their teeth are in (i.e. chewing on fingers or a dummy constantly, lots of drool) combined with a temperature and bad breath – the cause may actually be their tonsils!

What does surgery (a tonsillectomy) involve?

Surgery will normally take place at a hospital (probably as an outpatient). The doctor will review medical history in advance and make recommendations about pausing medications. You will normally be advised not to take anti-inflammatory medications within 7 days of surgery. They will also discuss post-operative pain medication.

The day of the surgery will involve a period of fasting; food or water won’t be permitted because they can impact the anesthetic. It’s a good idea to have family support and a game plan of how to distract your child; an older child may understand why they can’t eat but a toddler is likely to just focus on the fact that they are off routine and they are HUNGRY!

During surgery, your child will be under a general anesthetic. The surgeon will enter through the mouth and the tonsils will be removed with an electrical cauterizing unit.  You can watch videos of surgery on YouTube but they can be a bit difficult to stomach; I preferred this video of a digital tonsillectomy surgery.

adenotonsillectomy

Adenoids and tonsils

Often the adenoids will be removed at the same time as the tonsils (if they are also swollen); this is termed an adenotonsillectomy. Click here for information about the adenoids.

What happens after surgery?

Depending on the age of your child, they may keep them in the hospital overnight for monitoring or they may go to a recovery room and then go home the same day. You should be given a pamphlet with information about post-op care (i.e. like this tonsillectomy guide).

Your child may feel quite groggy and tired for the next few days and also have some nausea; vomiting once or twice is normal but contact your doctor if vomiting persists.

A light, cool diet for the next few days is generally recommended (avoid hot liquids or spicy food) but doctors will often recommend that children eat whatever they want – the abrasion from bread or crackers will actually help to clean the area. (That’s not to say there won’t sometimes be screaming pain because a sharp cracker edge has just struck the surgical site).

Some doctors will prescribe antibiotics. They will normally be prescribed painkillers (like Pammol and Tramadol) and anti-inflammatories (like Nurofen); if your child won’t take the fully funded options consider buying over-the-counter replacements (for kids) that have been flavoured.  It is important to keep on top of their medication (including waking them up around the clock for a few nights) as the pain is severe; it will often peak somewhere around around Days 5-9 due to the way the membranes heal and can be excruciating.

It’s important to keep them rested and hydrated – even if this means just getting small regular sips of water, lemonade ice-blocks, or melty ice=cream into them; overall, the fluids are more important than food.

Common side effects will include:

  • Swollen tongue
  • Bad breath (like a hyena!)
  • White coating on the tongue
  • White scabs over the tonsils

Your doctor will talk you through potential complications and when to seek immediate medical care – i.e. if bleeding occurs (it can be life threatening); they may be able to resolve with medication or surgery may be required.

They need lots of rest for two weeks to promote healing and will be off school during this time due to the risk of infection.  They will also generally have several weeks off sports, exercise, and swimming.

Keep in mind that removing tonsils may only be one part of a wider treatment plan. If the chronic inflammation was linked to allergies then you will still need to work with a doctor to create an ongoing allergy treatment plan.

What is croup and how does it effect toddlers?

What does croup look like in toddlers?

What does croup look like in toddlers?

Croup is a viral illness in young children which causes narrowing of the upper airways. Croup is often a mild illness but can quickly become serious, so do not hesitate to get medical help.

The funny thing about croup is that it’s like the vampire of toddler illnesses. During the day it may not have a visible impact beyond your toddler eating little (and lets face it sometimes they do want to live on air and crayons) and sounding hoarse.  Daytime clues to croup might be largely losing one’s voice, eating little, a sensation like a slight obstruction in the throat, difficulty swallowing, and a mild temperature.

Toddlers have softer windpipes than older children so it’s often when they lie down to sleep that the narrowed airways will become more apparent. Their breathing may start to wheeze and become progressively more of a struggle; it can also cause a strange cough (stridor). What does a croup cough sound like in a two year old? It sounds a bit like a lion purring or a seal bark; personally I think stridor sounds most like a lion coughing up a fur ball.  The animal metaphors might sound cute but the cough can be so loud that it’s enough to travel between rooms and wake you up at night; it can also be frightening if it’s the first time you’ve heard it and you have no idea what it means!

For many children, croup will be a mild illness (which can recur) and which can be treated at home. For others, they need to see a doctor or require urgent medical care. In New Zealand there is a registered nurse available 24/7 to provide free health advice on Healthline (0800 611 116); they can help assess your child and advise whether to ring for an ambulance or wait to see a doctor the next morning.

Personally, I think that croup is worse for children that have allergies. In fact, as well as viral croup, there is also a form of spasmodic croup which may be caused by Gastric Reflux Disease (GERDs) or by allergies. I’ve also read blog posts from other allergy families where croup has become a recurrent problem for their toddllers.

For us, it involved night time difficulties with breathing and a croup cough. On ringing Healthline, I was advised to ring emergency services. A triage nurse did an assessment over the phone and dispatched an ambulance.  We spent the night in the Emergency Ward as she required oral steroids, monitoring for fever, and to remain semi-upright to provide relief for airways. Recovery at home took time, monitoring of airways, and a largely liquid / soft foods diet for a few days.

I continue to feel that croup can be a much more serious illness for families with medically fragile children – including food allergies, airborne/environmental allergies, asthma, and reflux. Doctors will most commonly look for croup in babies and very young toddlers but plenty of allergy families have shared that their children have continued to have viral croup up to age 10!

NOTE – Thank you to all the readers that have shared their stories with me!

If you’re familiar with what a croup cough sounds like then do advocate on behalf of your child for medical care if it’s needed – you’re the one awake in the wee hours of the night hearing it (and they may not have the cough during the day)!  Don’t hesitate to ring for an ambulance at night if your child is struggling to breathe!

It’s worth investigating what charges there are for your local ambulance service and if they have a subscription service. If you live in New Zealand, it’s around NZD$90 for each medical emergency (non-ACC) call-out of a St John’s ambulance but you can get an annual ambulance subscription for the whole household for NZD$65 per year.

What are adenoids and why do they need removing? (What is an adenoidectomy?)

What are adenoids?

What do swollen adenoids look like?

What are adenoids?

Adenoids are soft tissue located located behind the sinuses; they are part of the body’s lymphatic system (so are tonsils). When they are working properly, they help to recognise bacteria and viruses entering through the nose and produce white blood cells to fight off infection.

Adenoids are particularly useful during early childhood while the body is still encountering new bacteria and viruses for the first time and building up the immune system. Doctors tend to consider them most useful up to age 7; in adolescence they begin to shrink and by adulthood they can practically disappear.

Why do adenoids needs removing?

Sometimes in childhood the adenoids swell and stay swollen. This can be due to frequent infections, due to a chronically over-active immune system (i.e. in an atopic child there might be ongoing aero-allergens and food allergies), or for reasons unknown.

This swelling is particularly problematic the younger the child is because their airways are so small to begin with! Also, swollen adenoids often aren’t the only problem. Look at the picture above and imagine that there is also swelling in the nasal passage (swollen turbinates) and that there are also swollen tonsils in the throat – that can result in a highly miserable toddler!

What are the possible side effects of swollen adenoids?

  • Obstructive sleep apnea. The swollen adenoids can intermittently block airflow. It sounds like your child is silent and then there’s a big noisy sucking in of air.
  • Snoring and heavy mouth breathing.
  • Snotty / blocked nose.
  • Repeated ear infections. The swollen adenoids can block the Eustachian tubes and prevent fluid draining from the ears to the throat.
  • Blocked ears meaning that everything sounds a bit like it’s underwater.
  • Blocked nose meaning a deadened sense of smell. This can also impact their ability to taste foods.
  • Sinus headaches / pressure (in conjunction with blocked nose).
  • Sore throat and/or difficulty swallowing.
  • Fatigue. They might seem like they’re getting enough hours of sleep but in reality the quality of sleep is poor because their body is struggling to get enough oxygen through the night. It’s a bit like starting each day on a half tank of gas.
  • Developmental delays. Sleep is critical for young children. During those early years, they are rapidly growing and learning. They need sleep to focus during the day; to have time for their brain to make connections between all the things they have learned or experienced; and their brain releases a growth hormone while they sleep. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can make it harder for them to stay on track.
  • Behavioural difficulties. Poor sleep, fatigue and pain/discomfort, trouble hearing: these can result in daily misery that they don’t know how to express.

Why didn’t the doctor identify this earlier?

Your normal doctor (a GP) and even a paediatrician can’t see that the adenoids are swollen. You need to be referred to the Ears-Nose-Throat clinic at your local children’s hospital. They will be able to look in their nose and throat during the initial visit and then may request a facial x-ray and/or CT scan for confirmation. They may also monitor the adenoids over a few visits in order to confirm that they are chronically enlarged and not temporarily swollen due to infection; they may also try medications for a few months to see if these help.

It can be a bit like diagnosing the wind – you can’t see the wind but you can see the effects of the wind. You may even have the referral because of something unrelated (like repeated ear infections) and as a result of that find out that the adenoids have been swollen all along.

What does surgery (an adenoidectomy) involve?

Surgery will normally take place at a hospital (probably as an outpatient). The doctor will review medical history in advance and make recommendations about pausing medications. You will normally be advised not to take anti-inflammatory medications within 7 days of surgery. They will also discuss post-operative pain medication.

The day of the surgery will involve a period of fasting; food or water won’t be permitted because they can impact the anesthetic. It’s a good idea to have family support and a game plan of how to distract your child; an older child may understand why they can’t eat but a toddler is likely to just focus on the fact that they are off routine and they are HUNGRY!

During surgery, your child will be under a general anesthetic. The surgeon will enter through the mouth and the adenoids will be removed with an electrical cauterizing unit. You can watch videos of adenoidectomies (like this one); they aren’t pleasant to watch but it can be useful to help you understand what will happen.

What happens after surgery?

Depending on the age of your child, they may keep them in the hospital overnight for monitoring or they may go to a recovery room and then go home the same day.

They may feel quite groggy and tired for the next few days and also have some nausea; vomiting once or twice is normal but contact your doctor if vomiting persists.

A light, cool diet for the next few days is generally recommended (avoid hot liquids).

I’m sure my parents don’t have fond memories of me having my tonsils out when I was 4. I still remember staying overnight in the hospital! Mostly my memories are positive ones due to the fact that I got to spend a week lording it over my baby brother that I got to eat jelly and ice cream. No memory of the pain remains but the joy of those unexpected treats has lasted decades!

They will prescribed antibiotics and some light pain relief. They need lots of rest for 4-5 days to promote healing but the good news is that it is a much faster heal time than for having tonsils removed. They will also generally have 7-10 days off school and 3 weeks off sports, exercise, and swimming.

They will generally have post-surgery check-ups; your doctor will talk you through potential complications and when to seek immediate medical care.

They may have nasal stuffiness for a few months after surgery and may need nasal drops. Snoring may continue for several weeks after surgery (and may temporarily get louder). Their voice may temporarily change for a few weeks to a few months!

Keep in mind that removing the adenoids may only be one part of a wider treatment plan. If the chronic inflammation was linked to allergies then you will still need to work with a doctor to create an ongoing allergy treatment plan.

Looking for more information? I read through a wide number of sites  and this was the one I found most useful.

Can soybean oil and soy lecithin trigger an allergic reaction?

health-question

I’m drafting this post late one night in the hot muggy dark when I should be sleeping, would rather be sleeping, because I’ve spent the past hour awake and unable to successfully switch off. I think it’s because my brain is still percolating on today’s research and trying to fit it in with all of the other health-related research of the last few months; it’s rather like trying to put together one of those large jigsaw puzzles where you only have a vague idea of the expected outcome because you’ve lost the lid to the box which has the finished picture.

If you, or a family member or loved one, has been diagnosed with a soy allergy then you’re probably familiar with the phrasing that “the vast majority” (emphasis on the air quotes) of sufferers will not experience an allergenic reaction to soybean oil or soy lecithin. This does then rather prompt the question of, ‘Why not?’

What is Soybean Oil?

This oil is incredibly widely used worldwide. In the USA particularly it is apparently the most widely used edible oil taking up 55% of the market share in 2014. It’s cheap to obtain (because it’s grown year round in many countries as livestock feed), doesn’t have a lot of inherent flavour, and is proven to be highly adaptable and stable for uses within the food industry.

This is problematic if you’re allergic to it because it can appear in anything from dried fruit (like sultanas), to peanut butter, to cookies, to non-dairy coffee creamers. Anything that contains undeclared “vegetable oils” becomes suspect because there is a high likelihood that part (or all) of that is soybean oil.

The soybeans are cracked, heated, rolled, solvent-extracted with hexanes, refined, and then may be further blended and/or hydrogenated (partially or fully). Some sites discuss health concerns about soybean oil purely to do with potential adverse health concerns relating to hexanes, hydrogenation, or trans-fats. I haven’t researched those sufficiently to have formed an opinion so I’ll leave that to readers to follow up on should they wish.

What is soy lecithin?

To make soy lecithin, soybean oil is extracted from the raw soybeans using a chemical solvent (usually hexane). Then, the crude soy oil goes through a ‘degumming’ process, wherein water is mixed thoroughly with the soy oil until the lecithin becomes hydrated and separates from the oil. Then, the lecithin is dried and occasionally bleached using hydrogen peroxide. (1) (2).

Soy lecithin is used as an emulsifier to help stabilize food products and prevent them from separating out into their component forms (like in chocolate or margarine). Sometimes it will be declared on food packaging in full (i.e. soy lecithin), other times there is simply an additive number; 322 is almost always soy, 471 often so.

Can soybean oil or soy lecithin trigger an allergic reaction?

That’s really the crux of the matter if you (or loved one) has been diagnosed as allergic to soy. I’ve seen the full gamut of opinion online and in published books.

Some sources will argue that the high heats used to produce soybean oil and soy lecithin denature the allergenic proteins; others argue that there are no soy proteins in these products (or so few that they can’t cause a reaction). Admittedly, some of these articles I suspect of having a commercial bias.

Some take the middle ground and say that “the vast majority” of people sensitive to soy will not have an allergic reaction and to discuss it with your medical specialist (which you should do).

Some argue that it is difficult to accurately test concentration levels of soybean protein in these products and that often there is no legal requirement to do so (or insufficient oversight for sufficient regulatory surety). For instance, one study in 2001 found that the level of proteins found in six lecithin samples ranged from 100 to 1,400 ppm (parts per million); that’s a big range even in such a small sample size. By comparison, the 2013 ruling by the FDA required that gluten-free foods contain less than 20 ppm (3).

There don’t seem to be large-scale studies into using these products to trigger IgE antibodies. Small studies publishing in 1998 seem to suggest that these can cause an allergic reaction but only in some people that are allergic to soy (4, 5). One (non-medical) article suggested that sensitivity to soy lecithin may be linked to gut permeability (i.e. the more damaged and inflamed the gut has become, the more susceptible one becomes to even the tiniest trace of soy protein).

Conclusions

Yes, it is possible to have an allergic response to soybean oil and/or soy lecithin. Miss 2 appears to be allergic to soybean oil and I have reason to suspect that soy lecithin may also be a problem. Anecdotally, I’ve read blogs by people that react to these and corresponded with others that have. Working out if you’re allergic to soybean oil and/or lecithin can be a lengthy and frustrating process that often comes back to food diaries, trial and error, and consulting with a medical specialist.

Part of the problem with these two products is the possible variations; one day a food product might contain sufficient ppm of soy protein to trigger a reaction and another time it might not. For instance, leaving aside questions of general health, take the following example:

One Friday night you go to the supermarket and purchase (A) ice cream and (B) ice cream cones; both of these products contain soy lecithin as emulsifiers.

  • How much soy protein is in the separate batches of lecithin in products (A) and (B)? What if one has 18 ppm and the other has 1650 ppm?
  • What percentage of each product is made up of soy lecithin? What if one product is 5% and one product is 0.5%?
  • How much of each product are you consuming? What if your ratio of ice-cream to cone is 4:1 ?
  • What if the only reason you have a reaction is because of allergenic loading; i.e. you’re not actually reacting to (A) or (B) but rather to the combined exposure as a result of (A) + (B)?

Maybe you react and maybe you don’t. Maybe you buy exactly those same products (from exactly those same manufacturers) a month later and you do react because one or more of those questions above has a different answer.

Final conclusion: Food allergies suck.

I feel like I should make some off-the-cuff remark like “Food allergies suck (but not as much as vampires)” just to lighten the mood but the reality is that they do. Kia kaha, stay strong.

How is atopic eczema treated?

eczema5

Eczema – the painful cycle of inflammation

Eczema cannot be cured. It can be treated and managed; key to this is caring for skin and managing the cycle of inflammation. Ensure that you discuss treatment with a medical professional; it’s also a good idea to ask what they can prescribe (as this may be free or discounted) as this often includes soap replacements and moisturisers as well as treatment creams.

Moisturise

It’s important to keep skin supple and moisturised. It’s a good idea to bathe every day (as the water will help to hydrate skin) and avoid soaps and other products that will have a drying effect. I’ve heard some people find goats milk soap to be gentler than normal soap and some emollient lotions can be used as soap replacements (though you may find they do better in a shower than a bath as I’ve found they can be kind of gluggy in bath water).

It’s a good idea to moisturise every day even when eczema isn’t flared up. Be careful when selecting moisturisers as general ones often contain alcohol that can still have a drying effect. It’s a good idea to discuss options with your doctor or pharmacist, and to look for ones endorsed by an eczema association.

Also, try different ones. You might find that some work better for you than others or that you prefer the smell or texture of some over others. I have a sorbitol/glycerin cream from the doctor which is ‘fragrance free’ but which I personally think smells so bad, v.s. one from Curash which I don’t think smells at all.

First: Emollients

eczema4

Emollients are basically moisturisers that are essential for increasing skin hydration and mimicking the barrier effect of the surface lipids the skin is lacking.

These should be used at least once a day at a different time to when corticosteroids are applied (as they will dilute these and prevent them from being as effective). It’s most effective to apply emollients after a warm bath or shower while skin is still damp.

Types of Emollients

From most effective to least effective.

  • Ointment – This provides a ‘lock-in’ protective layer. It can leave a greasy film so is often preferred at night (over day).
  • Cream –  Thinner and easier to apply. It is less effective than ointment and will need to be applied more often.
  • Lotion – Has a runny consistency and is less effective again than cream.

Generally, the rougher and drier the skin is, the thicker the emollient that is required. So a lotion may be suitable when when skin is good but cream, and then ointment, as it gets worse.

Emollients are important as part of a daily routine and will help to soothe skin during a flare-up. They will not treat the inflammation and it is important that a treatment cream is also used.

Second: Corticosteroids

eczema1-topical-corticosteriod

Topical corticosteroids (like hydrocortisone) actually treat the inflammation and help to reduce itchiness. They help to reduce blood flow in the skin and suppress over-active infection-fighting white blood cells. They imitate the effects of cortisol hormones produced naturally in the adrenal glands.

Doctors may prescribe different strength corticosteroid creams for different parts of the body (i.e. a weaker one for the face, and a stronger one for feet or hands where skin is thicker).

Additional treatments

Depending on the severity of symptoms, doctors may also discuss additional treatment options such as wet wrap, or oral anti-histamines.

There is little research supporting the effectiveness of using oral antihistamines to treat eczema but they can provide relief; for instance, night time ones can temporarily ease inflammation and also cause drowsiness.  Not only is scratching bad for the skin but chronic sleeplessness (due to lying in bed scratching) can cause a raft of flow-on troubles, especially for young children, so a night anti-histamine is something to consider discussing with your doctor.

 

Key source: “Eczema: The Essential Guide” by Sharon Dempsey

What is eczema?

img_20170114_154411.jpg

Eczema – Coming from Greek phrase “to bubble” or “to boil over”.

Eczema, also called ‘atopic dermatitis’, is a chronic skin condition characterised by inflamed, dry, and itchy skin which can have periods of acute flare ups. It’s one of three diseases that form the Atopic Triad; eczema, asthma, and allergic rhinitis are linked diseases which some people are genetically predisposed to develop. Eczema is not an allergy, however, it’s common for children that develop eczema to also have food allergies.

NOTE: Eczema is not a contagious disease. It’s not something that can be caught from touching, playing with, or bathing with someone that has eczema.

eczema3

Eczema – Cause factors

Eczema can be maddening for those that suffer from it. Skin starts off becoming swollen, red, and bumpy. The skin becomes itchy, often intensely so, and sufferers can rub the skin raw simply because the pain is easier to tolerate than the itch. The skin can also feel hot and painful. Little water blisters can appear that will burst and weep easily if scratched. It’s important not to scratch as this will damage the skin further (easier said than done, especially for young kids!).

Skin will bleed easily because of the inflammation and scratching damages the skin cells resulting in additional blood and immune cells rushing to the area.

It’s also common for areas of skin where eczema frequently flares up to become rough, scaly, chapped, and cracked. This is because dead skin cells are shed and replaced at a faster rate than healthy skin; these dead cells often sit on the skin. These areas of skin also lose moisture more easily and as it escapes the skin dries out and cracks form.

It’s important to discuss treatment options with a medical professional; eczema requires on-going management and care for the skin.

eczema5

Eczema – painful inflammation cycle

Key source: “Eczema: The Essential Guide” by Sharon Dempsey

What is the Atopic Triad?

eczema2-atopic-triad

Atopic Triad

‘Atopic’ refers to diseases that are hereditary and therefore tend to run in families; they also often occur together. It’s common for someone to have eczema, a form of allergic rhinitis (like hayfever), and asthma (though they may have these at different times of their lives); someone that is ‘atopic’ (or a family that is ‘atopic’) are also more likely to have food allergies. It’s possible to have mild cases of these diseases (like eczema) and not be atopic; it requires a doctor’s diagnosis and the demonstration of allergic antibodies.

It’s worth researching ‘atopy’ when it’s diagnosed by a doctor because it helps to have an awareness that your toddler that has eczema has a higher chance of developing asthma later in childhood (see ‘The Atopic March’).  It also means that if one parent has hayfever and another has a mild food allergy, children have a greater chance of being ‘atopic’ although they may exhibit this differently than either of their parents.

If you have suspicions of a food allergy, allergic rhinitis encompasses more than just hay fever in response to pollen. In general terms it means that an allergen has caused the inside of the nose to swell and become inflamed. This can cause cold-like symptoms, such as sneezing, itchiness, and a blocked or runny nose. Ongoing inflammation in the sinuses can also result in ‘allergy shiners‘ (like a continually bruised look beneath the eyes even if sleep hasn’t been disrupted). The problem is that under 5’s do get a let of colds and it can be hard to distinguish between an actual cold and a warning sign that there is an underlying allergy. If there’s a family history of atopic illnesses or your child has been diagnosed with other atopic illnesses (like eczema) then it’s worth reading up on the most common food allergies and discussing these with your doctor. For most children, a food allergy will result in them creating IgE antibodies which can be screened for with skin or blood testing.

 

 

Key source: “Eczema: The Essential Guide” by Sharon Dempsey

The Complicated World of Food Allergies: Allergy (immediate) v.s. Allergy (delayed) v.s. Intolerance

checklist

Identifying why your baby or toddler is miserable, screaming, unable to sleep, refluxy, colicky, vomiting, prone to rashes etc. is often a daunting task that bears with it a heavy burden of responsibility. It can feel like a frustrating, maddening,  and isolating process. You are your child’s best advocate. You are the one spending the nights pacing them through the house so that you don’t feel so horrifyingly impotent and because it seems to marginally comfort them. You are the one weeping because they are clearly so unhappy. You are the one that sees them day in and day out (and often through the night). You are the one with a niggling fear that something is wrong, even if they are your first and only, because they are nothing like the healthy, happy, peacefully sleeping babies you see with other mothers.

There can be a number of medical reasons for the circumstances above and a food allergy or intolerance is one of those (it may also be coupled with another condition such as Gastric Reflux Disease [GERDS] and be a compounding factor for the other condition). Many allergens can pass across in breast milk and even minute traces can be enough to trigger a reaction. For some, the allergy or intolerance may not be apparent until they begin eating solids, or until they’re a toddler, or until they’re almost starting school. I still have vivid memories of sitting in the car as a three or four year old wishing desperately that I could trade bodies with someone to see if they also had a sore stomach all the time; it was so constant and such a naturalized part of my young world that I never told my parents. It wasn’t until a major vomiting incident at a birthday party, triggered by a small ice-cream, that an investigative process started that identified I was intolerant to dairy.

Terms like allergy and intolerance can be bandied around interchangeably in the media, and sometimes by medical professionals, but they have quite different meanings. There are also two different types of food allergies, immediate and delayed, with the former getting more press.

Food Allergy: Immediate: IgE mediated

A food allergy is an inappropriate immune response to a particular food protein. An immediate type allergy happens very quickly after the food is eaten (or sometimes after minute traces of the food touch the skin or membranes). Reactions are caused by a particular part of the immune system causing the body to release histamine and other chemicals, leading to hives, swelling, and, in rare cases, anaphylaxis (a severe, life-threatening reaction). A skin prick or blood-specific IgE testing can be useful for diagnosis.

Oral Allergy Syndrome

A sub-set of this is Oral Allergy Sydrome which usually develops later in childhood or in adulthood. It happens after a person develops an allergy to a pollen. As well as getting seasonal hay fever, their immune system starts identifying foods that contain proteins with a similar structure to the pollen. The immune system then mistakenly identifies this food as being pollen when it is consumed and causes a mild allergic reaction in the mouth (such as itching or swelling). This can happen even with food that has previously been regularly eaten without issue. So for example, an allergy to birch tree pollen can cause a reaction when eating apple, peach, plum, cherry, potato, carrot, hazelnut, pumpkin seed and aubergine. A ragweed pollen allergy can cause a reaction to melon and banana; mugwort pollen can cause a reaction to celery and tomato; grass-pollen can cause a reaction to tomato, melon, and peach.

The process of cooking often destroys the pollen-like protein so someone may react to raw apple but have no reaction, or milder symptoms, when eating apple pie.

Food Allergy: Delayed: non-IgE mediated

The reaction can occur hours (or sometimes days) after the food is eaten, making them very difficult to diagnose. The reaction is caused by a different part of the immune system to IgE mediated reactions; one of the biggest problems is diagnosis as allergy tests are unhelpful for delayed allergy. In truth, delayed allergy is a spectrum of disease, in terms of severity and where the problems show themselves such as in the gut or skin. The most common causes are cow’s milk and soya, and less so wheat and egg. Typical symptoms may include persistent non-responsive eczema, rash, refluc, colic, diarrhoea, poor weight gain, difficulty feeding, and, less commonly, constipation. Breathing symptoms are rarer and do not occur in isolation, i.e. they may have noisy breathing or a wheezy cough in conjunction with reflux.

Diagnosing often involves detailed daily diaries (covering everything from food, sleep, bowel motions, and mood), food inclusion-exclusion challenges, and working through skin prick and/or blood-specific IgE testing. This should be done under the qualified care of a dietician and peadiatrician. It can be a long, difficult journey but it is important to keep detailed, accurate notes and to persevere.

Food intolerance

“More common than a food allergy, food intolerance is a reaction to food that does not involve the immune system. Although symptoms can mimic an allergy, the causes are different and on-set of symptoms is often slower and longer lasting. Symptoms of food intolerance can include almost anything but most commonly fatigue and gastrointestinal symptoms, such as diarrhoea and vomiting, bloating (often as part of irritable bowel syndrome) are described.”

Atopic disease

You may hear doctors talk about a family as having a family history of being atopic. “This refers to a group of illnesses, including eczema, hay fever, food allergy, and asthma that are characterised by the presence of immunoglobulin E (IgE) antibodies.”

Atopic illness in a parent(s) makes it more likely that children will also present with these – although they may be to something different. For instance,  parents might have asthma, hayfever, and an oral food allergy but their children may have eczema and an allergies or intolerances to different foods than their parents.

Resources

It is important to seek professional medical advice if an allergy is suspected.

There is of course a wide range of information on the web (some more reliable than others). The source that I have drawn on for this post, often quoting directly, is my favourite of the six allergy books that I’ve read in the past two months and the most relevant to my family: The Allergy-Free Baby & Toddler Book by Charlotte Muquit & Dr Adam Fox. I also found it the most approachable in terms of language and found it comforting that it included anecdotes from a number of other families.

My other recommendation is that if you have access to a free public library system then make use of it. Just like finding the right pair of shoes, look at a range of books until you find the one most relatable to your circumstances. If you find one that you really like, and would want to re-read, then buy just that one book. I definitely found it helpful having an understanding of what tests and diagnostic process to expect and I actually took my copy of Charlotte Muquit’s book into some appointments with me.